No fewer than 42 persons have reportedly died of sickle cell disease in Anambra State recently.
The Director, Sickle Cell Orphanage Home, Agulu, Anambra State, Aisha Edwards Maduagwu disclosed this at the weekend during a visit to the home by members of the Nigeria Union of Journalists (NUJ) in the State.
Sickle cell anemia is one of a group of inherited disorders known as sickle cell disease. It affects the shape of red blood cells, which carry oxygen to all parts of the body.
There’s no cure for most people with sickle cell anemia. Treatments can relieve pain and help prevent complications associated with the disease.
Speaking during interaction with the NUJ, Maduagwu said she had buried 42 sickle cell victims since she started sickle cell advocacy.
As a consequence, she has cautioned intending couples to stop lying about their genotype status to avoid producing children with sickle cell diseases.
She said sincerity to spouses ahead of marriage would go a long way to reducing the number of sickle cell patients.
She also warned against spiritualizing sickle cell issues, saying God’s miracle was only manifested in the wisdom he gave man to dictate that SS carriers were not matchable as far as marriage is concerned.
She said: “I left the Nigerian army to take up this advocacy because as someone living with SCD, I feel the way of reciprocating God’s love for me is to give back to society and God who gave me the opportunity to live and raise children up to university level.
“Take our genotype message to anyone that cares to listen. The genotype issue is real and can’t be spiritualized. The miracle of God here is the intelligence he gave to man that SS can’t marry SS.
“These children are rejected by their own family members because they feel frustrated and can no longer manage their health conditions.
“The worst thing that can happen to one on earth is being rejected by one’s parents. That’s the situation of the children I manage here, very sympathetic and heartbreaking.
“This is the first sickle cell orphanage in Nigeria. Ever since we set up this home, we’ve lost only a child, an orphan, and the only surviving child in the family, a kidney problem. I’ve buried a total of 42 persons since I started this advocacy.”
Appreciating the NUJ members for the visit which she described as timely, Maduagwu urged spirited individuals to support the home to better the lives of the children.
Earlier, Chairman of NUJ, Comrade Odogwu Emeka commended the commitment of the management of the home in taking care of the children, assuring them that their efforts are not in vain.
